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The algorithm uses this information to increase or decrease the insulin coming from your pump. The CGM updates your phone app every few minutes and predicts whether your blood sugar is stable or going up or down, and how fast. You also need a continuous glucose monitor (CGM), a device with a tiny sensor under the skin. To use it, first you need to be on an insulin pump, rather than use injections. I got hold of it after a fellow diabetic told me about it.
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They have posted this algorithm online, and anyone can download it for free. She shared this online with other diabetics, and together this community developed a system that got the algorithm to control her insulin pump directly. She could then apply these herself rather than make educated guesses, as most diabetics do. She ‘hacked’ into her blood glucose monitor and fed in an algorithm to get it to make accurate calculations about her insulin dose. The system was developed in 2013 by Dana Lewis, an insulin-dependent diabetic from America. Then, two years ago, I paired this up to a system that constantly reads my blood sugar level via a small monitor on my arm - and, using a sophisticated algorithm on my phone, that reading controls my pump automatically, giving me the right dose of insulin.
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But those days are gone now.įor ten years, I’ve had an insulin pump - a small electronic device with a thin tube which goes under the skin and releases regular insulin day and night.īut while the amount of insulin it pumped out was constant, this was not matched to what I was doing or what I’d eaten, so I still had many hypos and hypers. I’ve also woken up at home with my wife restraining me.
I’ve woken up a few times in hospital with a glucose drip in my arm and my head stitched up. He’s a foot taller than me and gets violent in a hypo, which means I have to restrain him as paramedics can’t.’ ‘We’ve had two massive hypos in the past six weeks, resulting in paramedics coming. I am at the end of my tether with trying to care for him through hypos that leave me in bits and my young daughters traumatised. She wrote: ‘I have been with my partner for 20 years. Some years ago, after I’d had a horrendous hypo in the middle of the night, Glenda posted on a social media forum about the effect my diabetes had on her. Left untreated, this ‘hypo’ can kill you in a matter of hours. If your blood sugar levels go too low, the brain is deprived of fuel and you go into a coma even more quickly. If levels go too high - known as hyperglycaemia (or a ‘hyper’) - this can lead to severe dehydration and even a coma as your body tries to get rid of the excess sugar. Getting the level right is like walking a tightrope across Niagara Falls: one slip could be fatal. While asleep, I had experienced a massive drop in my blood sugar (or glucose) level, hypoglycaemia (or ‘hypo’) - a life-threatening condition that caused me to fit and flail while slipping into a coma. This gives you the measurement for that moment but, crucially, can’t tell you whether your blood sugar level is rising or dropping. You prick your finger, squeeze out blood and put it on a strip that is read by an electronic device.
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It then takes the glucose into your muscle cells for fuel, stashing the excess in your liver as a reserve.Ĭurrently, if you are diagnosed with type 1, you will typically be given two forms of insulin: a long-acting one that you inject morning and night, plus a quick-acting insulin that you inject pretty much every time you eat carbs.
This hormone mops up the glucose released from the carbohydrates you eat (contained in sugar and starchy foods such as potatoes, rice, pasta and bread) from your bloodstream.
Before I began using this ‘DIY pancreas’ in 2020, I injected myself with insulin up to ten times a day. And now the NHS is piloting a scheme to see if more patients like me can benefit from a similar system. This then administers a constantly re-calibrated insulin dose. The pancreas is the organ that produces insulin, and - like a growing number of people with type 1 diabetes - I’ve put together a system whereby a standard insulin pump and a blood glucose monitor ‘talk’ to each other via an algorithm downloaded on my phone. Many times before and since (this event happened 25 years ago), my life has depended on good Samaritans, friends and, after I got married in 2005, my wife, Glenda, to bail me out.īut all this is now in the past thanks to an artificial pancreas that I made myself. This particular incident was an extreme but in no way isolated event. This was what my life had been like since 1983 when I was diagnosed, aged 15, with type 1 diabetes (meaning I don’t produce any of the hormone insulin, which the body needs to maintain the right amount of sugar in the blood). I’m an insulin-dependent diabetic and had come from the gym after a workout, injected insulin, eaten and had a snooze.